Monday, July 28, 2008

Inside the Green Berets

Inside the Green Berets ~ the Men of Firebase Cobra. I caught this program again tonight. I remember when Jon and I watched it the first time! It is on the National Geographic Channel(which is channel 276 on DirecTV). We tuned in because we have a great interest in military life. This program shows the Green Berets in action, their daily lives in Afghanistan. It was neat to see some of them with beards and scruffy faces. It showed the fine line between "healers and killers." They came to an Afghan village and had a medic team there. They treated anyone who would come, the Afghan's lived in fear of retaliation from the Taliban from seeking medical help. A Grandfather brought his grandson in, right away both Jon and I saw that he had Down Syndrome. I was shocked. Tears were rolling down my face. Yes, children with DS exist outside of America(You can look on the national websites and see the unique and beautiful colorings but those same eyes, those same features). I was truly amazed that the boy has survived. I mean without major surgery, Archie might not be here(I hope you don't mind me saying that Anne), and without a simple feeding tube maybe Carpenter would not have been here either. (God has granted us being in a wonderful place that has awe inspiring medical experts.)I was just struck by the love his family shown the Afghan boy with DS, the medic/sniper who treated him teared up, and struck by this beautiful boy. One of my next thoughts was how to save him. You see children suffering especially children with DS, you want to save them and bring them to America. But I could tell his family loved him and he seemed pretty happy. I just thought that his family is not worried about EI's, Speech, Physical, and Occupational Therapy. They are just worried about survival. I couldn't sleep that night when I first saw him, my prayers were up lifted to him all night. I cried when I watched it again. The whole hour long segment is a tear jerker. But I really learned a bunch from the segment. War is hard to describe, and possibly can not be fully explained unless you were there. I just thank the soldiers and their families for their unending service to our great country!

It comes on again tonight at 11pm. Maybe you could set a reminder! It is well worth it!

First Oreo!


So I let Rowan have his first oreo the other night. I would have never given this to any of my other kids! I am a mean mom and I don't like to give sweets! But I guess with the fourth child I am getting a little slack! I just wanted to see what he would do with it! He loved it! He immediately went to the bath! Sorry the quality is not soo good! Jonathan took it on his camera nextell phone!

Sunday, July 27, 2008

longsjoyfuljourney.blogspot.com

Saturday, July 26, 2008

Some old random pics

Just wanted to post them! Jon found them online at Kodak! Haven't seen them in a while! I can't believe how tiny Carpenter was! Where has the time gone?

Box Car Willy!

Riding toy fun!

Bath time!

Birthday boy!

He loved that cake!

First Buddy Walk!

Pop Pop and Carpenter

Carpenter and Marley

Thursday, July 24, 2008

Old pics

I am posting these pics because they were Rowan's 6 month pics. And poor child, they were his first pics! The fourth child did not get a picture taken of him professionally until he was 6 months old! I don't even want to talk about his baby book! So here are some old pictures, I am hopefully going to go get his 9 month pictures taken soon! I wanted to post these a long time ago! So at least I did it, right?





And I finally got some pics of Sadie done!

Wednesday, July 23, 2008

Buddy Walk 08

Just wanted to let family and friends know that Buddy Walk 2008 is almost here! We hope that everyone will be able to come out a support Carpenter this year! We had a wonderful time at Furman last year! I know we will have a great time again this year! The Furman campus is just so beautiful! Buddy Walk Registration Brochure is now available. Please remember, you must have the completed form sent in BEFORE September 1, 2008 if you would like a t-shirt! The Buddy Walk is on Sunday, September 28, 2008 at 2pm!

We can't wait to see you there!Buddy Walk in Greenville Celebrates Down Syndrome Awareness Month

WHAT: The 2008 Down Syndrome Family Alliance of Greenville Buddy Walk at Furman University is one of 190 Buddy Walks planned in cities across the country this fall. The Buddy Walk was developed by the National Down Syndrome Society (NDSS) to promote acceptance and inclusion of all people with Down syndrome.
WHEN: Sunday, September 28th. Registration begins at 12:30 p.m., and the one-mile walk kicks off at 2 p.m.

WHERE: Furman University at the Herman W. Lay Physical Activities Center (PAC). For driving directions and a campus map, please click here.

WHO: About 200 people are expected to attend. Participants include people with Down syndrome from the Upstate area and around the state, their families, friends, teachers, coworkers and other supporters.

If you would like to register for the walk, please download the “ Buddy Walk Registration Brochure” and follow the instructions. To guarantee receipt of a t-shirt, please return your registration form by September 1st. Remember, you are welcome to register to walk up until and including the day of the event, but if you do so following the September 1st you may/may not receive a t-shirt.

BACKGROUND: Each year, the Buddy Walk touches thousands of lives. When it began in 1995, there were walks in 17 cities. This year, at least 190 Buddy Walks are scheduled from mid-September through November, with more than 200,000 people expected to participate.

Nearly 700 people attended the Down Syndrome Family Alliance of Greenville Buddy Walk last year, raising approximately $30,000 to benefit our children and families. This success is without precedent.

In 2007 Buddy Walks raised more than $1.7 million to benefit national education, research and advocacy initiatives, as well as local programs and services. All funds raised through the Buddy Walk support both local and national programs. For more information about the National Down Syndrome Society Buddy Walk organization, please click here.


DSFA-Greenville 2008 Buddy Walk Highlights

Participants will enjoy many exciting features unique to this year’s Buddy Walk. Some of the features planned for walk day include:

• Free Light Lunch, Ice Cream and Beverages available to all walk participants
• Free T-Shirts available to all walkers registered before/on September 1st
• Live Musical Entertainment
• Wall of Advocacy celebrating the achievements of individuals with Down syndrome
• Live Butterfly Release Ceremony to be held following the walk
• Mr. Earl Frady and the Shriner’s Clowns to entertain walkers
• Buddy Walk and Down syndrome Merchandise Table open to walk participants

Please make plans today to join in the fun on Sunday, September 28th!


How can you help?

BUDDY WALK BROCHURE: You can download our “Buddy Walk Registration Brochure” here. Make copies of this form and distribute the copies to your friends and family, coworkers and neighbors. Encourage everyone you know to attend the Buddy Walk.

Please be advised that the Family Alliance has mailed a copy of the registration brochure to everyone on our mailing list. If you would you like to be added to our mailing list, or if you already receive correspondence from us but need to update your contact information please do so as soon as possible.

VOLUNTEER OPPORTUNITIES: Are you interested in helping to execute our Buddy Walk? If so, please e-mail us, or fill out our online volunteer application.

SPONSOR INFORMATION: Would you like to become a Buddy Walk sponsor? We are looking for in-kind donations of your product or services, or monetary donations. Please contact us if you would like to speak with someone about becoming a sponsor.

The Buddy Walk planning committee has created a series of documents to make approaching potential sponsors easier. Please review our “Letter to Potential Sponsors,” “Sponsor Information,” and “Sponsorship Levels Document.” We ask that you approach potential sponsors with this information only after you’ve first spoken with a member of the planning committee.

LETTER TO ELECTED OFFICIALS: Invite your local elected officials to our Buddy Walk. Save the "DSFA-Greenville Letter to Elected Officials" and send it to your representatives. Remember to update your personal information before you send the letter.


Thank you to all of our 2007 Buddy Walk Sponsors

Presenting Sponsors for gifts of $1,000

SAM Group, Inc.
BI-LO

Supporting Sponsors for gifts of $500

Ahold USA
Archie’s Room
Ashby Park Pediatric Dentistry
BMW Manufacturing Co.
Cameron Construction, Inc.
Dynamic Exhibits
Edy’s Ice Cream
Rourk B. Freeman, DMD, PA
GHS Children’s Hosptial
MDI
On-Site Wood Repair
Pazdan-Smith Group Architects
Skyline Displays
Upstate Maternal Fetal Medicine


Event Sponsors for gifts of $250

Fuller Consulting Engineers, Inc.


Partner Sponsors for gifts of $100

Mac Bowers, DMD, PA
J. R. Fuzia, DMD, PA
G. Gray Kitchens, Jr., DMD, PA
Lewis, Karen, Claire and Ellis Moore
James B. Tankersley Jr., DMD
Zen Garden Spa


Patron Sponsors for gifts of $50

Terry A. Willis, DMD
Dr. Harry G. Bobotis
IBM
Upstate OMS & Dental Implant Center


Buddy Sponsors in-kind donations

…and why not balloons
Awards & Sports
Dogs On Wheels
Duncan Chapel Fire Department
Mr. Earl Frady & Shriner’s Clowns
Furman University
Gabby Gadgets
Sandra Hammack
Imagining Technologies
Michael Jorgue Johnson
Piedmont Boys
WYFF News Channel 4



Funds Raised to Benefit Children, Families Affected by Down Syndrome

The money raised by the Family Alliance will cover the expense of the numerous services we offer locally:

Therapeutic and recreational programs for individuals with Down syndrome;
New parent resource packet and support group;
Seminars, discussion sessions and a quarterly newsletter;
Internet sit providing local and national resources, upcoming event information and an interactive discussion board;
Resource lending library;
Social activities such as our ice cream social and Christmas party;
Provide speakers for groups interested in learning more about Down syndrome.
The Family Alliance also plans to send a generous percentage of funds raised by the Buddy Walk to the National Down Syndrome Society to support their programs and efforts advocating for individuals with Down syndrome, and families touched by Down syndrome.


Buddy Walk Hall of Fame

In 2007 we asked Buddy Walk participants to compete in the Buddy Walk Challenge. We asked participants to create a team, or raise money individually. During the Buddy Walk awards ceremony, we recognized the top three fundraising individuals or teams as recipients of our Buddy Walk Challenge Award.

The 2007 winners of the Buddy Walk Challenge were:

First Place – Archie Moore, Raised over $8,000
Second Place – Ryan Matheson, Raised over $5,000
Third Place – Ryan Freeman, Raised over $3,500

Tuesday, July 22, 2008

Black Out

So we had a pretty nice storm last night. We'll it knocked out the power! The kids an I love to watch the storms. We usually sit on the floor in front of our picture window and turn out the lights and watch the lightening strikes. So we are all there huddled together and irnoically the lights go out permanently. Marley said "I wish daddy was here!" And I said I did too. We quickly moved to the couch because the storms were getting more powerful. I had a scared Sadie, whimpering Carpenter, a worried Marley, and a screaming Rowan. Rowan just got his first dose of antiboitic for an ear infection plus he is getting two teeth in and is not a happy camper. Sadie's quote of the night was "No, I told that thunder NO!" By this time I have all three of the little ones on my lap, this would not have been a problem except that the power was out and so the air conditioning was out! I was burning slap up, we were sweating! Finally I was able to calm Rowan down and get him to sleep. Then Jon came home and we sat sweating! I have come to find that it is not fair for the power to go out on the hottest day of the year so far! So we opened up the windows, which I hate, due to safety reasons, this really did not help! So the rest of the night was getting kids and putting them back into their beds because they are soo uncomfortable because of the heat and Rowan crying all night long! The power came back on at about 2am! I think all of the Golden Strip was out for a while! I can not do without my power!!!

Monday, July 14, 2008

Blood Diamond

A few weeks ago, Jon rented some movies. One of them was Blood Diamond. Usually, I love films like this. I love war movies, unique movies that teach the viewer alot about the cultures around them. We'll I couldn't even make it through this movie. Mostly since Rowan was born, I just can't take stuff anymore. I can not watch movies that hurt children. To see children as young as Marley killing innocent people with automatic weapons just hurt me to the core. Seeing brutal factions cut each other's arms off was just too much for me. I know what is going on in the world, and how wonderful we have it. I just couldn't take it anymore. I look at things through a mother's point of view, that look on every child as if it was happening to their own. So I couldn't even make it through Blood Diamond. I was just totally shocked because this had never happened to me before. Did I lose my backbone? Jon said that is was a really great movie though!

It made me what to take my diamond off of my finger. I am a simple person when it comes to wedding bands. I wanted something plain. Our love was not measured through a rock. It would mean as much to me if it was just a plain band. It makes me not want to buy a diamond again.

On a happier note:
Marley has rated a few Disney movies in order of which were the best!

1. Camp Rock
2. HSM 2
3. HSM

I was really surprised, I thought she would have like the HSM series better. She said "Three Jonas brothers are a whole lot better than one Zac Efron!" I was like OMG, when did this boy talk start?

Tuesday, July 8, 2008

Super Rowan!

Rowan you are truly growing like a weed. He is not as old as he thinks he is! He just turned 9 months old and I can't believe what he just did! I know you may think I am crazy for letting him do this but I was sitting right beside him! Rowan ate his first chicken nugget tonight from Wendy's! Can you believe it? I can't believe he ate the whole thing by himself! He loves bananas and sweet potatoes but he is starting to only want big people food! When I set the two middle kids in their booster seats on the floor he is like a vulture stalking his prey! He comes in for the attack and he steals their food! Sadie always tells Rowan "Swiper, no Swiping!" Rowan is really funny! He wants to be in the middle of Carpenter and Sadie all of the time! Like when we exit the house, Sadie and Carpenter are fighting over who gets to come outside first, they don't see Rowan crawling right beside them, he sneaks right past them and gets out first!

Rowan, you are such a wonderful baby! Your face lights up with just a wonderful huge grin when people talk to you! Now if you slept through the night my world would be great!

Saturday, July 5, 2008

Red, White, and Blue Dog

Happy 4th of July! We had a wonderful celebration of our country's birth!

First, we started off with Fountain Inn's first annual bike run! Marley rode 3 miles on her bike! I was soo proud of her! We rode all around to the different parks in the city limits. And when I said we, that means that Gran, Pop-Pop, Carpenter, Sadie, Rowan, and myself rode on the golf cart! Hopefully next year I can bike the little kids around too! They had about 40 bikers, 1 on a unicylce, and 1 blown tire! Marley loved that we had police escorts! She felt real important that the other traffic had to stop!

Getting directions!

Unicycle

Police and Weston Grill Boys

Marley

Picture Attempt

Next, we went for our annual 4th of July lunch at Memas! We had a great time with family! Uncle Scott and Aunt Lisa got a new swimming pool put in. It is a salt water swimming pool. I had never heard of that before. But I am not up on swimming pool knowledge. With a salt water pool you don't have to use all of those chemicals! I have no pics of pool time because we had our hands full with the kids!

Usually we go to the church for a big 4th of July celebration! But our music minister left in November. So we still have a vacant position. If anyone knows of a music person looking for a position, please tell them!

But back to our day, that night we went to Fountain Inn's first annual 4th of July Celebration. They called it Red, White, and Blue Dog. The band the Blue Dogs played from 8-11pm and had shagging music before them. We had a great time with family and friends! Poor Sadie fell on the pavement and busted in lip bad! But all in all we had a great time that was only a mile away!

We made the kids matching shirts this year. My idea excuted through Jon's artistry. I want to be crafty but do not have the skills to be. So I got 4 t-shirts. We put fireworks on the front using glitter fabric paint and pipe cleaners. And on the back iron on letters for LONG. And then underneath that we put 01 for Marley, 02 for Carpenter, 03 for Sadie, and 04 for Rowan! They turned out pretty cute!

T-shirt front

Marley and Sadie

Carpenter and Rowan

Rowan trying to escape from stroller

Marley pushing Sadie

Gran and Pop-Pop cutting a rug!

Rowan crawling everywhere

The Blue Dogs!

Friends forever!

Papa and sleeping Rowan(how do babies fall asleep during such loud noise?)

The Dyers

The crew

The Perry's

Me and crying Sadie

Thursday, July 3, 2008

Mrs. Patty

I have been crushed this week. I have learned that Carpenter's SI(Special Instruction) is changing jobs! To say I am devastated can not fully describe the words I feel! She has been with Carpenter since he was a month old! In October it would be 4 years! She has truly been like my second mother. I was totally surprised that I could get this close to someone! She has seen my house messy, me in my pj's, and kids going crazy. God truly blessed us by placing Mrs. Patty in our lives. She is just one person that I know loves and adores Carpenter. And would do anything for him! She also makes all of the other kids feel special. It is hard to do SI, with 3 other kids around! It is just heartbreaking! She knows all about our family. And I share in the joys of her family! She is also a huge amount of support for me. She calms my fears when I don't think that I am doing enough for Carpenter. She was excited about the arrivals of Sadie and Rowan. Mrs. Patty stayed at home with her sons and just reinforced how important that is! Mrs. Patty will still me living in Greenville but will commute to NC to work SI up there. Apparently they pay their people a whole lot more!

I don't know what we will do about our weekly appointments with Mrs. Patty. I thought she would at least be in our lives for Carpenter's first 6 years! I will miss her being apart of our family. I hope and pray that we will stay in touch!

We love you Mrs. Patty, thank you for your hard work, dedication, love, and strength you have given to our family! She helped me find a voice in dealing with the world of disability.

Wednesday, July 2, 2008

Momma's Got a Brand New ..... Computer

Jonathan got me a new dell laptop! I am supposed to help Jonathan more with the bills and tax stuff! But I also think that I will blog more. It came in while I was at the beach! I couldn't wait to open that box! But when I went to do my beach blog! It took forever for Blogger to upload the pictures! Several failed attempts later I finally got it up! So hopefully everything will go smoother!